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St. Augustine Boy with Pfeiffer Syndrome Makes Huge Strides in 2010

8:04 AM, Dec 30, 2010   |    comments
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ST. AUGUSTINE, Fla. -- It has been an especially good year for a St. Augustine boy with a rare craniofacial syndrome.

He went from barely being able to speak 12 months ago to having a growing vocabulary.

William Thompson was born with Pfeiffer Syndrome, a rare craniofacial disorder. His mother, Lisa Feller, said her son has one of the most severe cases of Pfeiffer Syndrome in the world.

"It [Pfeiffer Syndrome] affects everything," explained Feller.

Thompson has difficulty with everyday things, including speaking and walking. The 6-year-old has already undergone more than 50 major surgeries, including facial reconstruction and brain surgery.

Feller said when her son was born doctors told her he wouldn't live. Everyday can be a battle, but for the first time Thompson started speaking and he's beginning to walk using a walker, said Feller.

"This has been his most profound year of his life," she said.

Feller credits his therapists and Thompson's positive attitude for his progress. Doctors also recently noted Thompson's progress, and told Feller he will grow up and could even have children of his own.

To help with Thompson's medical expenses, an account is available with M&I Bank. 

Checks can be made out to 'William F. Thompson Special Needs Trust' and mailed to 5461 U.S. Highway 41 North Apollo Beach, FL 33572. 

First Coast News

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