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First Coast Boy with Undiagnosed Illness Leaves Wolfson Children's Hospital

11:12 PM, Mar 2, 2011   |    comments
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JACKSONVILLE, Fla. -- A First Coast boy has spent the last two months at Wolfson Children's hospital and now he's headed to Minnesota to meet with a specialist.

Doctors have been unable to diagnose 6-year-old Luke Akerstrom's condition. 

On New Years Eve 2010, the then 5-year-old had a seizure and doctors found swelling in his brain.

"We had a perfectly normal life. We had a 5-year-old kindergartner, who was excelling in school. He plays the violin he plays soccer and then just in one moment everything changed," said Brandi Akerstrom, the young boys' mother. 

Luke lost his speech and the muscles on the left side of his body are constantly contracted.

"It is like having a cramp since New Years Eve," explained his father, Magus Akerstrom. 

Doctors say he's an unusual and complex case. "If you were told you had cancer, at least you understand what that is," said Dr. Raj Sheth. "This has the implications of being just as bad as cancer and yet it's a big black box where you don't know specifically what to expect."

On Sunday, the family is leaving Jacksonville for Rochester, Minn., where they will meet with a pediatric neurologist at the Mayo Clinic.

"We pray for complete healing. We still have faith that we'll have our little boy back," said his mother.

MORE: Donate to help Luke.

MORE: Learn more about Luke.



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