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Dreams Come True grants dream for 10-year-old battling Nephrotic Syndrome

12:04 AM, Dec 21, 2012   |    comments
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JACKSONVILLE, Fla -- Simone Grissett has been bravely fighting a serious health condition for six years, but this holiday season, she gets to trade a hospital bed for castles and princesses. 

The room was filled with princesses and tiaras, all to give 10-year-old Simone Grissett a preview of what her Christmas and New Year's holiday will be like -- magical. A 'Dream party' unveiled a holiday surprise for the Grissett family.

On December 26th, Simone and her family will embark on an all expense paid seven-day vacation to Disney World. The trip is part of a dream granted through the Jacksonville organization, Dreams Come True, and it comes at a much needed time in Simone's life.

"Just to see the smile on her face and have fun and not have to worry about going to see any specialist, blood work, or any hospitals anything like that," said Tonetta Grissett, Simone's mother.

For six years, Simone has been battling Nephrotic Syndrome, a kidney disorder.

"She tried every single drug, she started having relapse, trying one drug after the next, and nothing was really working," said Grissett.

The disorder causes extreme swelling and abdominal pain, and Simone even began to have issues with her blood pressure at four years old. She went through several relapses every year, but now, she's been in remission for eight months, and this dream will give her a chance to just be a normal 10-year-old girl.

"For a family, it's a chance to see this child not going through treatments, not trying to figure out the uncertainties, and what tomorrow may bring, but instead it gives them memories of sitting down with a Princess, or going through a castle, something that they will always cherish," said Andrea Siracusa, Special Projects Manager with Dreams Come True of Jacksonville.

December is one of the busiest months for Dreams Come True. This month alone, about 20 dreams have been granted, and every year about 140 get to live their dreams because of the organization. And now Simone's picture will go up on the wall just like the other children that have lived their dreams thanks to the organization. Her family said they are very grateful.

"It's just a big relief for her to just be Simone," said Grissett.

Only 15 of every 100,000 children are diagnosed with the syndrome. Some of the symptoms are swelling, weight gain from excess water, puffiness around the face and eyes, foamy appearance in the urine, and even poor appetite.

For more information on Dreams Come True, go to www.dreamscometrue.org.

First Coast News

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